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Monday, March 30, 2009

My girls

Today was another preemie dig at my heart & soul.

Arianna had her 3 year pediatrician appointment.

She's 36" tall, finally. But lost weight, again. She's 26 lbs. 1 oz. She has a cold, no surprise, but I think we've come to the conclusion she has asthma and will need to be on medicine now. Although this is totally no surprise to me I'm bummed. Being a preemie has hit her hard for being a nearly 29 weeker. Heck, I was only 2 oz. bigger than her when I was born at 30 weeks and I haven't dealt with what she's dealt with. It makes me sad and feel guilty at the same time.

On the bright side though we're working hard on our phonics and math and she's doing great. She can read a few words and what she can't read she can at least sound out phonetically and sometimes figures them out. She's really amazing me with the attention level she has for this.

Gross motor wise, well... she's really far behind. I see it more and more. She goes to gymnastics and can't do anything the 2 year olds can do. Her gait is really immature for a 3 year old, she can't/won't jump, can't/won't 'do' stairs and is very clumsy - to the point that I think she's a danger to herself. But, as her pediatrician pointed out, it's not delaying her advancement so we'll just let it 'get better'. Well how can it get better without help? I'm really concerned about it and don't feel I'm getting much help.

She still stutters, especially when asking a question, but apparently they don't do anything about it until age 5 and even then its done through the school system which is backlogged, under staffed and unorganized.

Daria is 7 months now and weighing in at a very hefty 19 lbs. She's in the 90th percentile for weight and 75th percentile for height - she's just a moose! She sits up on her own fully now, gets up on her hands and knees for crawling (but thank god doesn't do it yet), is experimenting with solid food and today she said 'mama'. She has the most infectious laugh and is totally a dream baby - sleeps well and hardly ever fusses. She nurses avidly and makes me so very happy - she's my sanity saver when Arianna is 'in a mood'.

What post would be complete without pictures of my babies? I took these last week at the Roger Williams Park Botanical Gardens.






2 comments:

Kimberly (Anthony's Mom) said...

Those are just beautiful pictures!

Kim

Laura said...

the girls (and the photos) are gorgeous!
about the help seriously girl that is such bull shit about not having access to help for your daughter. Unfortunately the shrewish, nagging mom is the mom that gets the services her special needs child is entitled to. your daughter can and should (by law) get services from the school district at age 3. i had to bitch a little and complain why it was taking so long for the school district to assess Daniel after he aged out of Early Start but i did get it and he got in a special ed preschool with emphasis on speech. there were "normal" kids there as well as kids with assorted developmental, physical and emotional special needs. while there he also received "adaptive PE twice a week which was nothing more than physical therapy. Daniel still takes speech in 1st grade but will likely stop that after next year. he also still has adaptive PE. he can do practically anything an average 5 y/o can (he is 7 now) so the goal is to catch him up and build up his confidence in playground skills because we all know that is where it is at...on the playground.
seriously, contact the school district psychologist and request an evaluation by them and a speech specialist and possible IFSP (that is like an IEP) as well as her previous PT, OT, ST team members and any other ex preemie/special needs resources in your area for advice. You are entitled under federal law for your daughter to have services she qualifies for and the school district is bound by the law to provide them or provide access & pay for agencies that can provide said services.