ENT appointment

Information for Arianna's ENT Appointment:


She has had

• 9 ear infections since September
• 2 sinus infections since September

She has

• constant stuffy/runny nose
• severe aversions to us touching her face because we've been wiping her nose so long

1. this affects her ability to eat also as bring a spoon to her mouth requires it touching her face, therapy is slow going on this as we still have to go at her face with tissues
2. getting her to take a bath is also difficult, she has actually hurt herself trying to get out of the tub and away form a face cloth touching her face

When hospitalized

• her oxygen saturations were low until they suctioned her nose

Her choice of antibiotics is limited due to her possible Long QT Diagnosis

• She has only been able to have 4 antibiotics, zithromax/omnicef/amoxicillin/augmentin, we are avoiding those with sulfur.

She has not consistantly gained weight due to be sick so often

• the antibiotics mess her her stomach
• the pressure in her head from the infections affects her ability to swallow and chew

Her sleep is affected

• she gags on the mucus
• she can't breath through her nose which wakes her up
• when she was younger she would have almost apnea events of 15 seconds - we were told it was due to apnea of prematurity but I'm not convinced as she was 10 months old

Her hearing has suffered

• she has consistantly failed all of her tympanography tests
• she has never tested below 20 db in either ear
• she is currently considered 'delayed' in speech and cognition due to her hearing

Think I'm missing anything?